• HOME
    • Looking after yourself
    • Dealing with feelings
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    • Families
    • Sharing experiences: blogs
    • How to use social media (Twitter and Facebook)
    • Visiting a relative in a care home
    • Apps for you
    • Working and caring
    • Employment: how can my employer support me?
    • Capturing good times
    • Connecting with someone who has dementia
    • Will I get dementia too?
    • Coping with loss
    • When caring ends
  • INFO
    • Glossary
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  • CARE/1
    • Carers' Assessment
    • After diagnosis (1)
    • After diagnosis (2)
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    • What is Dementia?
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    • Practical Tips - page one
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    • Person centred dementia care
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    • Depression
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    • End of life care
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    • Engaging the senses
  • HEALTH
    • The role of the doctor and dementia assessment
    • Doctors, consultations and how to manage
    • The roles of other medical practitioners
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    • Going into hospital
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  • CARERS
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    • Couples: Amelia and Pearl
    • Pamela
    • Families and dementia
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    • The Accidental carer
    • A day in the life of a carer
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  • CARERS/2
    • No bad hair days please!
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    • Anna
  • PEOPLE
    • Sue
    • Jenny
    • Marie
    • Andrew
    • Alan
DEMENTIA CHALLENGERS
It’s only recently that I began to appreciate the impact that mum’s diagnosis of dementia had on members of the family and on my children. I hadn’t fully realised their concerns that dementia may be hereditary and that one day, they too, might have dementia in some shape or form.  I’d assumed (erroneously) that they knew the facts, same as I do. So, this page is for those relatives who may have these concerns, even if they don’t share them with you.  Although my children hadn't asked the question - "Mum, does this mean you'll have dementia one day?" I realised during a conversation that they both had this concern. It led to an interesting discussion, not specifically about dementia, but about age and expectations, wishes, wills and being older and needing support. It wasn't easy - who wants to think of themselves as being old and reliant on others? Nevertheless, it was a good conversation to have and it led me to thinking about where to signpost my children to information about dementia and specifically to answers to their questions.
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There’s useful information at  Dementia Today on the genetics of dementia and, even if your relatives haven’t expressed their concerns to you, I’d suggest being up front with them and asking them to read this page. 

Alzheimer's Research UK goes into more detail about genetics and dementia


This will hopefully provide reassurance for some of your family and is a good opportunity to talk about lifestyle choices, and about the research which is underway to help us understand more about dementia in all its forms. It may also give an opportunity to have "that" conversation, which I feel we all ought to have, about the future, should illness or disability strike up. The conversation about expectations, responsibilities, and end of life care.


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