There is so much information on the internet that I found it impossible to know where to look first. Here are some recommendations which I hope you find useful. I've split this into four pages; the first page is general information around all things legal, financial, and general . The second and third pages are information for family carers - organisations who can offer support and the 4th page has information for your relative who has dementia including online forums, and organisations run by people who live with dementia, supporting others, running forums, face to face meetings, social groups and events and helping raise awareness of different types of dementia and ensuring those who have dementia have a voice in the wider community and engage and educate society. This page also includes links to blogs written by people living with dementia - I'd suggest you would also find these blogs very useful as they give a perspective of daily life through the eyes of several people in different countries who live with dementia.
Commonly used words and phrases relating to dementia
The first place to begin may be a "Jargon buster" to help you understand some of the words and phrases used in social care. A list of the most commonly used has been put together by TLAP (Think local, act personal)
Information - general
The Department of Health have a portal dedicated to information about Dementia and the Dementia Challenge and it's a good first place to find out the latest developments, news and initiatives including news about a new initiative called Dementia Friends.
During 13th and 14th March 2013 The Department of Health ran the Dementia Village at Expo, with exhibitors, events and speeches all related to dementia. They captured all the activity and lots of videos and information in an online resource. It's well worth taking a read through the "Storify" to find out about lots of resources and initiatives. For example - did you know that there are dogs who can support people who have dementia? Take a look at the information which has been put together.
Did you know there is a Dementia Strategy? Well worth a read as it will highlight what's being done to raise awareness, achieve early diagnosis of dementia and good quality treatment.
The main GOV.UK website is the place to go to find up to date information
In 2014 The Care Act was passed (UK). The main fact sheet can be found in "Employment, how can my employer support me" which is a tab under "You".
Who regulates care? Take a look at the page "who regulates care" for information about England, Scotland and Wales.
General legal issues - there's also a page called "Legal Info"
The Alzheimer's Society has a range of fact sheets and information. These include Mental Health Act, Mental Capacity Act, the Rights of Carers.
Dementia Web also have resources (Legal planning and dementia) with information around the legalities such as Lasting Power of Attorney and Living Wills.
Lasting power of Attorney
Appointing someone to make decisions on your behalf from the UK government website.
Most of the information you'll need is under the Care sections. If you or the person with dementia have a social worker or other Local authority input they will also be able to signpost you to other resources. Don't forget your local Citizen's Advice may also be able to advise you.
If you can't find what you want, run a search on the website which should find you information via related keywords. If you still can't find it please email me so I can rectify that and add the information.